5 February 2019
1:00 p.m. EST
The price for validated and verified patient data for clinical trials recruitment and research is highly valuable. The value trapped in unused data to expedite finding treatments and therapies for chronic or rare diseases is priceless.
85% of personal health data is only used once! (Dr. Vahan Simonyan, CRISPR Therapeutics). In real terms, what does this mean? That the global health community is investing money to generate data that gets used once and stored away in a silo for no other person or entity to use. This creates both a financial and time deficit for clinical researchers and scientists who need data to expedite therapies from the bench to trials to patients.
Join IEEE Standards Association (IEEE-SA) for this complimentary webinar and learn how cutting-edge technologies such as blockchain/distributed ledger technologies (DLT), artificial intelligence (AI), machine learning, etc. are feeding scientists and researchers with critical data to identify the genesis of diseases but also how to better anticipate and combat them. They are not only breaking boundaries on what kind of data it can produce beyond human capacity but breaking the norms on how we share it, use it and continue to contribute to it with the consent and management by patients.
This one-hour webcast will provide four key answers on why patient-centered data exchanges are the future of health and how they can create opportunity for all stakeholders. These questions will be addressed:
- How service-based architectures enable assetization of data and commoditization of data access where the data exchange between consumer and owner of information can happen
- What are the incentives and opportunities for patients? Clinical researchers? Healthcare organizations?
- How real are the possibilities? What is needed to scale from POC to larger populations?
- What are the practical outcomes for clinical research, trials and overall patient health?